Jared and Alicia Galambos are the parents of 4 year-old Mason, who is living with Allan-Herndon-Dudley syndrome (AHDS), an extremely rare genetic disorder also known as MCT8 deficiency. This young family's entire world came crashing down with Mason’s rare diagnosis. Caring for Mason is now an exhausting 24 hour-a-day job for his parents and comes at great monetary expense.
Children with AHDS struggle to support their heads. They are affected by a loss of muscle tone, developmental delays and subsequent health complications. As Mason grows, he experiences debilitating muscle spams and epileptic seizures, and was recently fitted with a feeding tube because he has difficulty swallowing.
AHDS diagnosis is one of those few moments in life that shapes someone’s future. Jared and Alicia had two options in front of them - accept the situation as hopeless and give up, or fight for Mason’s life, however long and difficult that road might be.
As time goes by, Mason will require ongoing surgeries and medical equipment which are not entirely covered by insurance. Within the next year the family will be forced to move to a more accessible home, and purchase a wheelchair vehicle, as Mason grows too big to be lifted and transported by his parents.
Family and friends provide as much help and financial assistance as they can, but it is now beyond their capacity to support Mason’s needs on their own.
Your generous donation will help Jared and Alicia afford Mason’s medical, surgical and mobility needs.
12/5/2023 03:46:19 am
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Gil Strachan is a professional home inspector, representing Electrospec Home Inspection Services in east-central Ontario since 1994.
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